i’m going to just start posting, whenever, wherever. sticking to too rigid a structure for this blog sort of defeats its purpose as a living document regarding life as a disabled person in 2026 america. current narratives fail to centre actual disabled voices. they cast disability in a dichotomy of ‘pitiable’ or ‘inspiring’. there isn’t a middle ground where a disabled person in america gets to be boring and average and still be celebrated and acknowledged as disabled. if you’re able to work with accommodations, people cry that you’re gaming the system if you still get a disability check. if you’re unable to work, you’re a leech on the system for receiving disability benefits. i really want to show a counter narrative to the traditional story: a real story, authored by an eccentric modern hermit who lived a real, full life and also struggled with disabling medical conditions.
the goal isn’t to define myself by my conditions, but rather to show a more realistic intersection of disability status and fulfilled living. disability narratives shown by traditional media outlets tend to paint disability as something tragic that ‘ruins’ a good person and robs them of fulfilled living. there is a pervasive myth that disability is a life-ending state to be in. this myth is one of the reasons that disability is framed the way it is. if the disabled person can’t rise above the challenges, they’re pitiful. if they can, then they’re ‘no longer disabled’ and therefore inspiring. there is no room for disabled people who are getting by but not being cured. there is no place where disabled people can celebrate excellence without becoming an inspiring story of how they were ‘cured’.
this blog, and my other social media accounts, are meant to document different aspects of disabled life, from joy to excellence. here on this blog, i’ll be talking about the harder truths of disabled life. topics will vary and i’ll sprinkle in some joyful content about my hobbies and things like that too.